NORD Announces Agenda for 2014 Rare Diseases and Orphan Products Breakthrough Summit - KXXV-TV News Channel 25 - Central Texas News and Weather for Waco, Temple, Killeen |

NORD Announces Agenda for 2014 Rare Diseases and Orphan Products Breakthrough Summit

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SOURCE The Natioanl Organization for Rare Disorders

WASHINGTON, Aug. 13, 2014 /PRNewswire/ -- The National Organization for Rare Disorders (NORD) today announced the agenda for the Rare Diseases and Orphan Product Breakthrough Summit, to be held October 21-22, 2014 at the Hilton Mark Center in Alexandria, VA.

Photo - http://photos.prnewswire.com/prnh/20140812/135518

This annual event is the innovative hub for all stakeholders in the rare disease and orphan products community  – providing an educational platform for pharmaceutical, biotech, researchers, patient groups, regulators, healthcare executives and more.

Attendees will benefit from the perspectives of 60+ speakers over the course of 30+ session options. Program features include:

  • 20+ speakers from the Food and Drug Administration, including Margaret Hamburg, M.D., Commissioner; Janet Woodcock, M.D., Director, Center for Drug Evaluation and Research (CDER); and John Jenkins, M.D., Director, Office of New Drugs in CDER.
  • Leading industry speakers, including several CEOs such as Robert Hugin from Celgene and James Greenwood from BIO
  • An Expanded Access Symposium with perspectives from the FDA, Kids v Cancer, BIO and PhRMA
  • Three track options: FDA Oversight of Orphan Products, Advancing Patient Engagement and Support and Investing in Commercial Market Success for Orphan Products
  • More than two dozen posters with original research, innovations and advancements, with the theme "Life-Transforming Treatments"

Sponsors of the two-day conference include BDI Pharma, COTE Orphan Consulting, Lash Group and Omnicare Specialty Care Group.

Event information, complete agenda and speaker list can be found at www.cbinet.com/NORD.

ABOUT NORD:

NORD is the voice of the 30 million Americans who have rare diseases. Since 1983, it has been providing advocacy on public policies that affect the community; education and awareness for patients, caregivers, medical professionals and the public; research grants and fellowships; help in forming and growing patient organizations; and patient/family services including patient assistance programs to assure patient access to life-saving and life-sustaining medications.

All press inquiries should contact Lauren Donoghue, Senior Marketing Manager:

Email or 339-298-2262.

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